cancer

What happens when the things we hold dear start to crumble? Join us as our first storyteller faces a heartbreaking choice: let go of her family legacy, or fight for a piece of the past while making a discovery about nonperminance in herself. And facing loss isn't just about places, our next storyteller defies death itself, a therapist grapples with a hidden truth while our final storyteller navigates an unlikely love friendship running out on the trails.

Transcript : Close to the Edge - Part 2

Marc Moss

Tickets are on sale for the next live in person Tell Us Something event. The theme is “Going Home”. In collaboration with Missoula Pride, Tell Us Something is excited to bring you this evening of true, personal stories featuring many voices from the LBGTQ+ community. Learn more and get your tickets at Tell Us something.org.

Welcome to the Tell Us Something podcast. Tell Us Something is a nonprofit that helps people share their true personal stories around a theme, live in person and without notes. I’m Mark Moss, your host and executive director of Tell Us Something. Sometimes adventure is chosen. Sometimes it’s thrust upon you. In this episode of the Tell Us Something podcast, we delve into the journeys of four remarkable people.

What happens when the things we hold dear start to crumble?  Join us as our first storyteller faces a heartbreaking choice: let go of her family legacy, or fight for a piece of the past while making a discovery about nonperminance in herself. And facing loss isn’t just about places, our next storyteller defies death itself, a therapist grapples with a hidden truth while our final storyteller navigates an unlikely love friendship running out on the trails.

Kathleen Kennedy

I was simultaneously indignant and sympathetic, but I also had this feeling like I would love for squatters to come there and light a fire and burn it down like, problem solved.

Susan Waters

And the voice said, do you want to stay or do you want to go? And without even thinking about it, I said, if I still have work I need to do here, I want to stay. And the voice said, okay.

Annabelle Winnie

I do wonder if what we think of as traits for neurodivergent, if they’re really adaptations, is there ways that the body adapts, behaviors adapt, and even the brain itself adapts to a world that often feels too bright, too loud. It’s just too much.

Amanda Taylor

We were texting each other every day. Morning. Tonight we call them play by plays, which I also loved because it made me feel sporty, like, yeah, we’re sending play by plays.”

Marc Moss

We acknowledge that we are gathered on the traditional lands of the Salish, Ponderay and Kalispell peoples who have stewarded this land throughout the generations. As spring unfolded, vibrant colors and rejuvenates the Earth, we recognize the interconnectedness of all life and the importance of honoring indigenous knowledge and practices. In this season of renewal, let us commit to fostering a deeper understanding of indigenous culture and history.

Take time to learn about the traditional ecological knowledge of the original inhabitants of this land, and incorporate sustainable practices into our daily lives. Together, let us strive to be mindful stewards of the land, fostering harmony and respect for all beings who call this place home. A tangible way that we can do this is to practice. Leave no trace principles when we are outside recreating.

We can pick up our dog’s waste when we are out hiking. Don’t get it on the way back from our hike. Get it when it happens and carry it with us. Pick up trash where we see it. Observe wildlife from a distance and avoid feeding them. By practicing, some of these leave no trace principles, we can be stewards of the land that we claim to love so much.

We take this moment to honor the land and its native people, and the stories and knowledge that they share with us. 

Our first storyteller is  Kathleen Kennedy. Kathleen’s cherished family cabin, a symbol of precious memories, faces the relentless grip of time and erosion. A cancer diagnosis adds another layer of urgency, forcing a confrontation with impermanence. We call her story “Lessons in Letting Go” Thanks for listening.

 

Kathleen Kennedy

Kathleen Kennedy

 

When I was three years old, my dad began digging a trench that would be filled with concrete and form the foundation of a small cabin that he built by hand on the coast of Northern California. I can still see him, the shovel in his hands. His foot on the kick plate,  he’s wearing a white t shirt, he’s got zinc oxide on his nose and his hair.

 

His wavy brown hair is blowing in the breeze, there’s Bishop Pines behind him, and the mighty Pacific Ocean to his left.  My memory might be aided by the 8mm  home movie camera that chronicled much of this process,  but  when I say he built it by hand, I’m not exaggerating. We didn’t have electricity until the mid 90s when we got neighbors, and so every board was cut with a handsaw, every nail hammered in by hand.

 

And so it was a really slow process, but being teachers. My parents could load us up in the Volvo station wagon each summer, and we’d go camp in the redwoods of Guadalajara. My dad would go up to the lot and build. We were like a little hippie family. My sisters and me, we were wearing our plaid pants, our crocheted ponchos.

 

We had bandanas taming our really long stringy hair. But my parents were not hippies. They were about as straight as the nails that kept the framing together.  But, Once we could sleep inside the cabin, those times were magical. We could go down on the beach and play unsupervised, explore the tide pools.  We could look for the tiniest of seashells. 

 

And when the tide came in, we’d just go into the cabin and play. to the second floor and look out these magnificent windows onto the Pacific, and there was always something to watch. We look for gray whales, we watch osprey and brown pelicans, birds that were recovering from the ravages of DDT. And when I think about it, It’s really where I fell in love with the world and it’s likely why I became a science teacher. 

 

So  one year there was an El Nino event and the heavy rains and surf washed away about the last 15 feet.  long wooden staircase that led us down to the beach. And, you know, we didn’t mind. We just tied a rope around a post, and then we rappelled down. And, and when we did that, we’d go through this, like,  It was like mudstone, like a scree of mudstone.

 

And we didn’t really pay much attention to it. All of this material that was just kind of crumbling down from the cliff. And, you know, El Ninos occur on pretty regular intervals. So over the years, more of the cliff would erode. And then eventually the top started to erode as well. So, you know. And I distinctly remember sitting in my UM Geology class and learning about slope and a material’s angle, angle of repose and just having this sinking feeling because  suddenly I thought about that material and from that lecture hall I started to worry. 

 

I always knew I was going to retire there, there someday, you know, I would be content to live that simple life. Um, and I, I continued to visit and I put that out of my mind. But as an adult, my worries really shifted to my parents. And  my dad was showing some signs of dementia. And because I would travel from Missoula to the Bay Area and go up to the cabin to get my ocean fix, I was, I was aware of it.

 

I, each trip would notice more cognitive decline and I tried to tell my sisters and my mom and everyone was in denial until one day there was no denying it. And a few years later, he died of an aortic aneurysm. And I have to say, somewhat thankfully, he spared us from what would have surely been a painful, long goodbye. 

 

But,  I continued to go to the cabin. It was my happy place.  My mom, she struggled to get up there. But I would take her when I could.  And one trip I arrived up there and, and the ground was kind of sinking and there was a tree that was leaning one of those Bishop pines and our neighbor’s deck was sinking and they had hired a geotech firm to figure out what was going on.

 

And I took all these pictures so I could report back to my sisters what was going on. And,  you know, the building didn’t. It wasn’t worth much, but it was my dad’s legacy. And that view was priceless. And I started to really, like, campaign to save the cabin.  And so we did try.  We hired that geotech firm and we got a plan and we moved the cabin  and then we put it on.

 

Kind of an, at an angle because the lot was getting smaller and smaller, closer and closer to the edge, if you will. And so,  did that on an emergency permit. We couldn’t obtain a full permit until we got approval. And so it was up on these supports.  And then COVID hit, and the county planning office closed down, and they weren’t doing anything.

 

They were not going to approve any permits because no one was there. When they finally reopened, suddenly the rules had changed. And now the height variance was no longer going to be grandfathered in, and they wanted a rare plant size. survey. They wanted an archaeological survey. Um, they did not like what the geotech firm had proposed for the foundation.

 

And we were sort of stuck. And you know, the money was going out to sea much like the material from the cliff. And we really didn’t know what to do. There were no more liquid assets. And so we just kind of paused while we gathered ourselves.  And then that cough that I had always attributed to Missoula’s, uh, smoky summer air, it turned out to be stage three lung cancer.

 

And suddenly, like, my whole world was crumbling. And so,  I was not thinking about the cabin, but I was also thinking how much I would have loved to be able to be there to recover from my treatment, but I couldn’t go because it wasn’t on a foundation and therefore uninhabitable. And about the same time, we had these new neighbors.

 

They were part of that, like, COVID urban exodus.  And they started to call and email, and they had a lot of complaints and questions and, you know, they were saying things like, hey, this is an eyesore and a fire hazard and we’re worried vagrants or squatters might come. And I was simultaneously indignant  and sympathetic. 

 

But I also had this I was feeling like I would love for squatters to come there and, and light a fire and burn it down, like problem solved.  So they, they were really relentless and, you know, we’re just like, Hey, she’s dealing with cancer. Like you can’t do this, but they didn’t care. And so finally I said to my sisters, we got to hire a lawyer.

 

And so we did. And then we, uh, said, hey, why don’t you ask them if they would like to buy it and perhaps deal with the expense, like a demolition permit is really expensive there, as is disposal. And miraculously, they said yes.  And then I had to  figure out how to let go, how to let go of this place that meant so much.

 

And so I tried to remember all of my Buddhist studies and think about impermanence and non attachment. And I finally came to a place where I was like, okay, yes, this is what we have to do, I understand.  And,  I also couldn’t stand the thought of certain things being demolished, and I had to go to retrieve them.

 

There were these little wooden, um, plaque pieces, scraps of wood that people wrote messages It was to my dad at his memorial and we were gonna put it in the fireplace there and burn them to send those messages up, but we never did. But I knew right where they were.  So my friend Sheila and I decided we’d go on this retrieval mission.

 

And we bought hard hats and gloves and, you know, wore these old clothes, and we drove up from our place in Marin, and we had to break in the door, because  it had settled. And when we opened that door, it was like this multi sensory assault.  Um, there were mouse droppings everywhere and mouse carcasses. It was almost like the mice died while they were moving through, scampering across the floor because, I don’t know, it was so clear that it was the right decision.

 

There was nothing that could have been done to bring that place back. And so I retrieved the things and I went up the stairs and I said, you know, kind of my goodbye and I looked out. The window, it had been turned and I looked at the view and it wasn’t anything like what I loved. Um,  so I cried and I took my leave  and now that I’m dealing with a cancer recurrence,  I’m trying to.

 

I’d like to just summon those lessons again to remember that clinging to something,  it often just delays inevitable, um, the inevitable and that it can often bring you even more pain.  And that, But the reality of impermanence, there’s no escaping it. So as I move through this next round of cancer, I want to remember those lessons.

 

I want to let them inform me  and inform how I choose to spend the rest of my days on earth. Thank you.

 

Marc Moss

Thanks, Kathleen.

 

Kathleen Kennedy grew up in Oakland, CA, and is a science teacher at Big Sky High School, with 24 years teaching experience. She has won a variety of prestigious teaching awards. She won the EcoDaredevil award in 2009, and in 2011 she was a Fulbright Japan-US Teacher in the Exchange Program for Education for Sustainable Development  She was an Adult Participant in American Youth Leadership Program’s Trip to Thailand in 2015, and continues to be passionate about her students and teaching. When she’s not busy saving the world and working towards a sustainable future, you might find her enjoying the beauty Missoula has to offer, rocking out to Pearl Jam, or dancing along to her favorite Dave Matthews song.

 

Next we join Susan Waters on a journey that transcends the physical.  Hear the voice that offered a stark choice at death’s door. Susan defies the odds and lives on to continue her work on this corporal plane. Susan calls her story “Fade to White”. Thanks for listening.

 

Susan Waters

One of the great joys of many outdoor recreationists is mountain biking.  There’s that incredible sense of freedom, being able to go far and fast.  And the burn of the muscles as you grind up those hills. And the precision and the focus it takes to do the single tracks.  And then that screaming exhilaration when you’re flying downhill. 

 

So it’s September, 2005.  Beautiful, late summer, Missoula day that you just don’t want to let go of.  I had just finished a group trail ride up in Paddy Canyon.  And everybody’s relaxed and happy, and they start heading back into town.  And I lingered behind because I wanted to take some photographs.  So when I was ready to come back down to town, I loaded up my bike, and started heading down Paddy Canyon Road by myself. 

 

And for those that don’t know, it’s a paved two lane road, generally in pretty good shape, light traffic,  um, but windy.  And I’m cruising along, not a care in the world.  And the last thing I remember is this visceral feeling that suddenly something huge was in front of me. And it happened so fast, and I couldn’t hit it, so I slammed on the brakes,  and black. 

 

The next thing I know, I’m pulling myself off the pavement,  onto the gravelly shoulder of the road.  And I’m stunned, and I have absolutely no idea what had just happened.  I was there for a while, and this little pickup truck comes up the road.  And a man who spoke very little English asked if I was okay. 

 

And, you know, stubbornly, I said, ah, you know, I’ll shake it off. I’ll, I’ll just, I’ll be okay. And I tried to get up, and I couldn’t.  So he stopped.  There was another bicyclist that came up the road, and he summed up the situation pretty quickly and took control and said, you need to go to the hospital.  So they load me up in the truck. 

 

We’re riding down Pattee Canyon Road,  and I keep losing consciousness,  and I manage to crank down the window.  And stick my head out so that the water, the, the air would hit me in the face and keep me awake.  And my consciousness kept fading to white.  And then there was this voice.  And it was genderless,  very kind but neutral, and matter of factly said, you know you can die from this, don’t you? 

 

And I thought, well, it’s looking a little worse than I thought.  And the voice said, do you want to stay or do you want to go?  And without even thinking about it, I said, if I still have work I need to do here, I want to stay.  And the voice said,  okay.  And from that point on, I had absolutely no fear.  I had an unshakable faith that I would be okay. 

 

And for once in my life, I surrendered into that. 

 

And I was at complete peace.  And this was way before the hospital drugs. 

 

So we have a bouncy ride back down into town.  We hit the downtown traffic, and it’s heavy. So the two guys in the truck are yelling at the other motorists in two languages to get out of our way.  We get to the ER, and things are relatively quiet. And that’s it. And, the crescendo starts building up, there’s more people, there’s more equipment, there’s all these sounds, they’re stitching me up, they’re taking me into scans,  and a doctor comes out, and is very serious,  and says,  you have a concussion, you have broken bones,  and you have severe internal injuries,  we’re gonna have to put you on life flight to go to Seattle. 

 

And I’m sitting there, taking a minute to take it in, and I’m like, okay.  So I’m laying on the table, they’re prepping me, and there’s two nurses, just right outside the door in the corridor.  And one of them says, I don’t think she’s gonna make it.  She came around the corner, and she saw me looking at her, and she was horrified. 

 

But I had to smile at her.  And I think I even winked at her. And I wasn’t upset at all.  Because I knew she was wrong. 

 

So now the hospital drugs are kicking in.  They wheeled me out on the tarmac at the airport  to get me on the life flight plane.  And I’m in one of those ridiculous hospital gowns, you know those really thin ones that make you feel really, really vulnerable?  And there was a big wind,  and my thought was, oh my god, what happens if the plane crashes?

 

And this is all I’m wearing. 

 

So the flight,  the pain,  boy, it hits hard  and I’m so uncomfortable and I turn on my side and my blood pressure crashes.  My angel paramedic brought me back  and I’ll never forget looking up at those warm, comforting eyes  that were so reassuring. And his gaze never left mine, that entire flight. 

 

One of my friends was able to get to the ER quickly, and they talked her into getting on the life flight with me to be my medical advocate.  And at one point in the flight, I looked up and I saw her. She was in a jump seat facing toward me. And she had those big headsets on. And her face was deathly white.

 

And her eyes like saucers. And she looked so small and so afraid.  And I just wanted to hug her and convince her that everything was gonna be okay. 

 

Seattle was nuts. Yes. I mean, if ever there was a time to check out, it was then.  There was so much noise and chaos and they were just tossing me around that I just surrendered again into this  peaceful sea of white. 

 

I regained consciousness about a week later in the hospital.  And then a couple of weeks after that I was released back home to a very long recovery. 

 

My helmet,  helmets,  and trauma medicine saved my life, and for that I will always be grateful.  The people were so skilled and so caring,  but the system is very strained,  and they don’t have a lot of time  to give individual treatment.  So after about a year of recovery,  An extreme physical therapy, it’s a sport. 

 

They were proposing some really invasive and scary surgeries.  And it just, down to my bones, did not feel right.  So I decided to go another direction. And I started looking into alternative health.  And there was no stone left unturned. And hey, it’s Missoula, you’re all out there. 

 

I did mental health therapy, I did eastern medicine, sacred,  indigenous,  all of those medicines  that are ancient and so wise.  And all of these practitioners took the time  And they were really present and really listened. 

 

I have to acknowledge I have a lot of privilege.  That I was able to,  I had a lot of options.  That not a lot of people have.  And they should.  Equally. 

 

And I also acknowledge that I had a lot of fairy dust. Good luck to.  So, do I regret  staying?  To be honest, at times, yes.  The following years were the hardest of my life, and it wasn’t just the recovery.  I lost both of my dear friends, lifelong friends, prematurely and tragically. Both my parents died.  I lost several animal companions. 

 

And I lost my livelihood.  But I’m on borrowed time,  so I have to be grateful, because I got to spend a few more years with those friends.  I got to hold both of my parents hands before they died. 

 

I played hard with those pet companions in the mountains and in the rivers.  I made tons of new friends, beautiful, wonderful friends.  And my family expanded,  and the love multiplied.  And I was so inspired that I studied and trained and I opened my own wellness practice. 

 

And  every day,  I’m so moved to be able to help other people find their light and their voice.  And gain the skills they need to navigate through their changes and challenges,  just as my teachers had done with me.  And they,  and beautiful, quirky Missoula and community that we have here,  all rallied together and motivate me every day.

 

To find joy and gratitude. And to keep looking for all of that work that I’m still left to do. [Applause]

 

Marc Moss

Thanks, Susan.

 

Susan Waters is an avid outdoor recreationist, family and friend cultivator, and animal lover. Raised in Missouri and Colorado, she was drawn to the laid-back and nature-focused lifestyle of Missoula in the 1990s. She has had many livelihoods, including working as an artist, writer, filmmaker, photographer and communicator for numerous environmental and social causes. Active in the community, Susan cherishes all of her daily connections and navigates with an open heart and a well earned sense of trust.

 

Coming up after the break,

 

Despite professional achievements and a happy family, a deep unease lingers for our first storyteller after the break, until a surprising discovery unlocks a door to self-understanding

 

Annabelle Winnie

I do wonder if what we think of as traits for neurodivergent, if they’re really adaptations, is there ways that the body adapts, behaviors adapt, and even the brain itself adapts to a world that often feels too bright, too loud. It’s just too much. 

 

Marc Moss

and our final story about two women exploring a new friendship, running on epic trails, pushing both their bodies and their hearts to the limit.

 

Amanda Taylor

 

We were texting each other every day. Morning. Tonight we call them play by plays, which I also loved because it made me feel sporty, like, yeah, we’re sending play by plays.”

Marc Moss

 

Stay with us.

 

Thank you to the Good Food Store who, as the Story Sponsor, helped us pay our storytellers. Learn more about them at goodfoodstore.com. Thanks to Spark Arts who provided childcare for the performance. You can learn more about Spark at sparkartslearning.org. Thanks to our Stewardship sponsor, Blackfoot Communications, who helped us to give away free tickets to underserved populations. Learn more about Blackfoot, celebrating 70 years, at goblackfoot.com.

 

Thank you to the Good Food Store who, as the Story Sponsor, helped us pay our storytellers. Learn more about them at goodfoodstore.com. Thanks to Spark Arts who provided childcare for the performance. You can learn more about Spark at sparkartslearning.org. Thanks to our Stewardship sponsor, Blackfoot Communications, who helped us to give away free tickets to underserved populations. Learn more about Blackfoot, celebrating 70 years, at goblackfoot.com.

 

You are listening to the Tell Us Something podcast where people share their true stories around a theme live in person without notes. I’m Marc Moss. Storytellers in this episode shared their stories in front of a full house on March 26, 2024 at The George and Jane Dennison Theatre in Missoula Montana.]

 

In our next story, Annabelle Winnie, a successful therapist and mother, grapples with a lifelong sense of dissonance. Despite outward competence, she’s navigated years of therapy, seeking answers for a struggle she couldn’t quite grasp. Annabelle calls her story “Belonging.” Or…”Another Way to See.” Or “Another Way to Be.” Thanks for listening.

 

Annabelle Winnie

I’m in my new therapist’s office.  We’re sitting under the branches of her indoor ficus tree. Across the room are bookshelves. There’s a sculpture, or maybe it was a print of a caregiver embracing a child. Because this is Missoula, a few of you may be wondering, have we had the same therapist? 

 

I’d gone to see her because I was having a dilemma of dissonance.  I guess people often see me as competent, composed, confident.  This was about 10 years ago. I was the mother of two young boys, married, and a successful professional.  And yet, I’d been in and out of therapy most of my life. More in than out.

 

The first time I went, I was seven or eight. My mom brought me because I seemed like a miniature adult. And it worried her. 

 

Yeah, hi mom, it’s me. I, I, yeah, I’m in my mid forties, I know. We haven’t really talked about this in decades.  But you remember in third grade and sixth grade, I didn’t understand what was happening. I just didn’t get it. It was terrible. It’s still kind of like that, I just fake it,  but I don’t understand what’s going on. 

 

This is when information about women and autism was just hitting the mainstream media. Because of my job, I had to read about it and I had to understand it. And the more I read first person narratives and interviews, the more I identified. It was starting to tear me up in part, apart, inside.  I tried talking to family, friends, even some close colleagues.

 

For the most part, I felt like, I felt like I got this look that said,  I don’t want to hurt your feelings, Annabelle, but I don’t see it.  And, and this  just  hit me in a very painful way.  I am a therapist,  and I’ve had a lot of positive feedback pretty consistently about my work. And yet I was understanding myself in this new way that made so much sense to me.

 

It just organized so many struggles I’d had.  But at this point, I was like, well, If I’m autistic, does that mean I can’t have empathy for other people or I can’t understand other people’s internal world? Here I was, I couldn’t understand my own internal world. I was starting to spin out. It was coming out sideways with my kids.

 

I was behaving with them in ways that I knew weren’t good for them. And so when this latest therapist suggested, as I myself had done already a couple of times, she is. Suggested that I get assessed, and I agreed. 

 

03a p2 Annabelle Winnie.wav

 

 It was kind of like a drug deal.  I had to cross state lines and it was a cash only  kind of a transaction.  I couldn’t. I couldn’t bear the idea of going to someone that I might interact with professionally and there’s no way this was going to be on my medical record. So I found a clinic in Denver, I went, I poured my heart out, they talked to my family, I took their tests and then I waited. 

 

I’m in my car behind my work building when I get the call, I take it right away.  Okay,  email, assessment, next week, talk, thank you.  They diagnosed me with mild autism. It’s still really weird and it was kind of painful.  It made so much sense. For the first time as an adult, I had a sense that there was a rhyme and reason to the ways that I had so consistently struggled. 

 

I read the assessment further. Yeah. Yeah.  Turns out,  I’m actually really smart. 

 

This really surprised me because  I knew I was very good at a few things, but I struggled with a lot of things that I didn’t hear people talking about as struggles. 

 

I’m not very smart visually. So I have a very high discrepancy between my verbal capacity and my visual capacity.  And again, I started to wonder, is this why not once, but twice as a child, I ended up in the emergency room because I kept walking into telephone poles and concrete pillars.  I wondered if maybe my brain just didn’t know what to do with visual social information. 

 

It’s like, who cares? Words are so much more interesting.  And then maybe my brain doesn’t put energy into my own nonverbal cues,  visual cues. So sometimes I may seem a little flat or wooden. And  I started to think about myself as a plant.  And this was very, very hopeful for me. 

 

We do share over 60 percent of our DNA with bananas. 

 

It’s true. 

 

I imagined, I really had hope, like autonomously as an adult, I had hope for the first time.  Like a plant, if I could just figure out  what are my sensory needs, what do I need to process a little more fluidly? What do I need to learn social, emotional  information or experiences? It’s not intuitive for me.  I imagine that if I understood this about myself and I could develop a deep acceptance, a radical love, that like a plant, I would just  grow. 

 

Nowadays, I feel more like a dog.  And like a dog shakes off excess water and mud, I just want to shake off preconceived notions, labels.  I just want to be myself.  There is a Maori.  A  linguist and educator who created a dictionary of mental health and addiction terms in the Maori language.  Some of the words he had to create because they didn’t exist in his language.

 

Takiwatanga is the word that he created for autism and it means in a person’s own time,  in a person’s own way.  He created this definition based on his experience of having been friends with a man with autism from as children and through adulthood.  I do wonder if what we think of as traits for neurodivergence, if they’re really adaptations, there are ways that the body adapts. 

 

Behaviors adapt, and even the brain itself adapts to a world that often feels too, too bright, too loud. It’s just too much. 

 

I’m in my late twenties. I’m in an intensive care unit. My grandfather just had bypass surgery. He’s on a ventilator. He can’t speak. His arms are restrained to the bed. My aunt and my mom are there. It’s a mess. I’m holding my grandfather’s hand. He’s he’s looks terrible.  This is my grandfather, a very quiet man. 

 

His humor was so subtle and so dry, if you sneezed, you might miss his jokes.  He was a physicist and he was a researcher and it wasn’t until after he died that his family, we knew how, um, accomplished he was cause he just didn’t talk about it.  He would reference chaos theory to try to motivate him to do housework. 

 

I’m going to go make some order out of the chaos, he would say, and rub his knuckles together in this very rhythmic, um, familiar way.  As he would go upstairs to work in his office. So I’m standing there with him, I’m holding his hand, he’s squeezing my hand, I’m squeezing him back, he’s squeezing my hand, and it comes to me in a moment, this is my grandfather who was a telegraph operator, that was his first job out of college.

 

He’s giving me SOS, I look at him and I say, you’re giving me SOS, and I wonder if he thinks he’s dying. I explain to him what’s happening, he’s on a vent, it’s going to pass. He’ll be able to talk again. And I, I do wonder if these questions of identity become so important for us as humans because it orients us toward where we belong and to whom we belong. 

 

Marc Moss

Thanks, Annabelle.

 

Annabelle Winnie has lived in Missoula since 2011. You might find her walking or biking around town, acting as chauffeur for one of her 2 kids, or taming the wild raspberry patch in her backyard. 

 

Rounding out this episode of the Tell Us Something podcast is Amanda Taylor, who learns that the path to love isn’t always smooth, and Amanda and Heather learn that the most powerful relationships can exist outside the box. Amanda calls her story “Heather”. Thanks for listening.

 

Amanda Taylor

 

 I Always thought that I needed to be perfect to be loved  and then I met Heather and Heather is almost six feet tall. She casually looks like an athletic supermodel without trying  she has naturally like white blonde hair and incredible calves  We first met at a Griz game, which is funny because I am not sporty at all. 

 

And we met at the game, and, you know, we stayed in touch afterwards via social media. And this was about 13 years ago.  And I would see her posting about going on runs, like the Missoula Marathon, or the RUT, which is a, if you don’t know, it’s a race in Big Sky where people pay money to run up a mountain where there’s, like, off the sides and they say that it’s fun. 

 

Um, and I would just hit love on those posts 

 

and I would run into her around town and she would say, Amanda, you have to come running with me. And I said, yeah, totally.  It’s like, I, I won’t be running with you.  And then about seven years ago I went through a breakup.  And I decided to reinvent myself as a trail runner.  And I remembered Heather. And so I reached out to her and I said, Hey, would you be up for showing me some trails around town?

 

If you just show me a few, like you, you don’t have to keep going with me, but if you just go with me like twice and show me where to go, then I can go alone and I’ll stop bothering you.  And she said, sure. And within five minutes, we had plans to meet up that week to go run at waterworks. And we did a loop around waterworks and talked about our jobs.

 

And I probably talked about dating like I always do.  And she, uh, you know, we didn’t share a whole lot. And then, um, she asked if I wanted to go on a steeper run and I said, sure, if we can go slow and she said, yes. So then we met up a few days later and went up Sentinel.  And as we made our way up, and my calves are burning, and my lungs are burning, and I’m trying to be sporty, um,  We hit this ice field.

 

It’s like a 3×3 ice field.  And I was like, ah, I’m scared.  I’m like, frozen. And she steps across the ice field with her giant calf.  And she reached across the ice and helped me across. And I was so embarrassed. I figured she would never want to go on an adventure with me again.  And then we got to the top and she went to give me a high five.

 

And I just did, you know, Cause  I’m not sporty.  And, um,  and then things kind of escalated after that. The next thing I knew, we had a workout schedule Monday through Saturday. 

 

With, um, runs and weights and yoga and Pilates. And, uh, we were texting each other every day, morning to night. We called them play by plays, which I also loved cause it made me feel sporty.  I’m like, yeah, we’re sending play by plays.  Um.  And then, um, you know, over time and many miles and,  and hours in the woods and up and down mountains and many pairs of shoes, I started to sense that there was something sad about her. 

 

And you can’t really approach someone and say, why is your soul sad?  So I thought,  I’m going to crack this nut, um,  I’m just going to share everything I can with her.  And then maybe she’ll tell me why she’s sad.  And so,  you know, and we had tons of time out there. Um, so I just shared everything about my life, a bunch of things that I will not be saying into a microphone tonight. 

 

Um, and things that were really shrouded with shame. And she would take all of them and say, Oh yeah, I could totally see how like given your life and what you’ve been through, like that totally makes sense that you would do that.  I was like, Oh, okay. She’s still here. Cool. Um,  and then she began to share a little bit about the relationship she was in.

 

And basically the conclusion that she had come to was that it wasn’t really love, like big love that makes your heart explode. It was just okay.  And he was a good person and they had a good life. So that’s what she was going to do.  I was like, ah, that’s where it is. Um, And so also why we were running all these miles is because she had gotten into a 100 mile trail running race and for some reason she thought I should pace her in it. 

 

And so we were training for this and I was going to pace her for the last 20 miles.  And we went to Idaho for this race, and, uh, during the race, at one point,  you know, she’s at mile 80, and I have fresh legs, so I can keep up, and, um, oh, if you’ve never been to a 100 mile trail running race, it is a spectacle.

 

Um, So, um,  Everyone starts out super pumped, they’re like full of smiles. And then you meet them at aid stations along this hundred mile route, up and down mountains, through the woods, through the night.  And as they go to aid stations, the life just slowly leaves  their faces.  And their, like, bouncy running becomes like a zombie shuffle. 

 

And they just look more and more sad every time you see them.  So I was there with her, mile 80,  and by this point she was having a lot of pain in her knees, and we were on a ridgeline, and I just remember watching her moving in pain. And behind my sunglasses, I’m crying. Because it’s so painful to see her in pain, but I’m supposed to be the strong one, like watching my clock, making sure we make the cutoff so she can finish.

 

So I did my job, I kind of held it together, and you can’t like, when you’re a pacer, you can’t touch them, you can’t hold their hand, you can’t hug them. So I just had to watch her suffer, and it was awful. But I kept saying, we got it, we just have to keep moving.  Eventually, we did get to the end, and, uh, she was the only female finisher of that race. 

 

Woo! 

 

And then on the way home, we sat in the back of the car for a lot of the ride, and she slept with her head on my leg. And I remember just wanting to cry about how much I loved her.  And I just thought, gosh, this is a really intense friendship. 

 

And, um,  It was. 

 

And then we got home and a couple days later we went for a walk to the river and we sat by the river and debrief the race and how she won and um,  and then she got serious and she said, Amanda, I have to ask you something. I was like, okay. And she said, what do you think about my relationship?  And I said, do you really want to know?

 

Because this is going to be hard. And she said, yes.  And so I said,  I don’t think that you’re happy and I love you so much that it  causes me pain to know that you’re not happy and that you’re not giving yourself a chance to live your happiest life.  And I said, I can’t.  I don’t think there’s any way I could sit.

 

Oh, I think I forgot to say, at some point in there they got engaged. So pretend I said that.  Boop! Little rewind. Um, so they were engaged and I said,  I don’t think I can sit at your wedding and watch you knowing that you are not happy. Like, that would break my heart.  And then we just sat there and stared at the river for a while. 

 

And then in  classic Amanda form, just blurting out things I feel uncomfortable about, um, I just said,  also,  I want to make out with you. 

 

And she said nothing. 

 

So I thought, great. I just made the greatest friendship of my life really weird.  Made it weird again. Okay. Bye.  And, um, I said, Oh my gosh, did I just ruin everything? And she just grabbed my hand, and we stared at the river, and she said, You didn’t do anything wrong. You’re fine. I just need to figure out what I’m going to do with my life. 

 

Which is such an easy task, right? Um, so,  um, I said, okay, and we parted ways. And then later, or a few days later, we met up to go for a run, because a hundred miles wasn’t enough.  Um, and I got to the trailhead, and she said, get in the car. And I said, okay. And, uh, and then she said, Amanda, I’m just gonna tell you everything.

 

Mm hmm.  And she said, I have loved women since I was four.  And I have loved you from the time that I helped you across the ice.  The timer doesn’t count if I’m trying not to cry.  Okay. 

 

Um, 

 

and she said,  I was dying when you wore that black dress to the trail running festival. And I was dying when you hung out in a swimsuit and a flannel all day.  And this whole time I have just been trying to be respectful and not see you like that, because I love you so much.  Whoo,  and then for the first time in my life,  I kissed a woman. 

 

And her Her hands were soft, and her face was soft, and her lips were soft, and there was no like, scratchy hair 

 

exfoliating my face. 

 

And we were basically together after that. And then,  you know, we were late for everything because we were in bed. And um,  And then the bliss wore off  and I was still the person I was with my issues and she was still the person she was with her issues  and the romantic part of our relationship did not work. 

 

But  we made a deal to be friends and to not give up on one another. And after that was a year, a very tumultuous year, or maybe a little longer of the most difficult conversations I have ever had that I never want to have again.  But,  um, 

 

now, um, she is the greatest, one of the greatest cheerleaders of my life. And she is living her happiest life with her girlfriend. And. And I am living my life knowing, even though I forget for moments, sometimes I know in my bones that I can be imperfect and loved.  Thank you.

 

Marc Moss

 

Thanks, Amanda. Amanda Taylor is a lover of laughter and of love. After sharing a story at Tell Us Something one year ago, she finally followed her dream of trying stand-up comedy. Now she is a local stand-up comedian, even though she feels like an imposter saying that. Amanda is on a lifelong journey of living in alignment with herself, and is forever grateful to each person who has loved and continues to love her along the way.

 

Please remember that our next event, in partnership with Missoula Pride is on June11 at the Glacier Ice Rink in the Missoula County Fairgrounds. The theme is “Going Home ”.  Learn more about Tell Us Something and get tickets for the next event at tellussomething.org.

In this week's podcast, you'll hear a forgiveness story about a young student’s misbehavior, a young woman’s survival story, the kindness of strangers on a train and a lifetime of love stories.

Transcript : Didn't See That Coming (part 1)

00:08
welcome to tell us something
00:10
every tell us something event is focused
00:12
on a theme
00:15
tonight’s theme is didn’t see that
00:17
coming
00:20
aaron parrott is a professor of english
00:23
at the university of providence
00:25
he and his most recent book he he
00:29
has his
00:32
he’s an author and his most recent book
00:36
is maple and lead it’s a collection of
00:39
short stories with woodcuts by seth
00:41
robey
00:42
he also runs the territorial press in
00:44
helena montana
00:45
devoted to fine letter press editions of
00:48
handcrafted montana literature
00:50
please welcome aaron parrott i used to
00:53
be a really bad kid
00:56
uh and worse than that i hung out with a
00:59
lot of other really bad
01:00
kids and in eighth grade
01:04
it was sort of this perfect storm of
01:06
badness
01:07
and that we all ended up in the same
01:09
eighth grade homeroom and worse than
01:12
that the regular teacher
01:14
about a third of the way through the
01:15
year
01:17
i think she got sick or there was a
01:19
death in the family or something and she
01:20
left and so we got a substitute teacher
01:22
for the rest of the year
01:26
you can already see where this is going
01:30
um and we just treated this
01:33
poor teacher horribly miss
01:36
porzig was her name uh
01:40
and two things i remember really vividly
01:42
my friend rod storley
01:45
i think we all got into chewing
01:46
copenhagen around this time
01:48
and her strategy was the the worst kid
01:50
in the class she would put behind her
01:52
at her desk facing the rest of the class
01:56
but then she couldn’t see what that
01:57
person was doing
01:59
and so he’s sitting at her desk chewing
02:01
copenhagen and opening the drawers and
02:03
spitting into the drawers told you we
02:06
were bad
02:08
um and i ended up in the principal’s
02:11
office
02:12
because i think i discovered william
02:14
burroughs around this time also
02:17
and i would sit in my in my desk and
02:20
just
02:20
shake like this and say i need a fix i
02:22
need a fix
02:24
and so i ended up in the principal’s
02:26
office
02:28
but the thing was we go to the
02:29
principal’s office and the principal
02:30
says so what’s he doing
02:32
and then my teacher says i need
02:36
and it was so goddamn funny seeing my
02:38
teacher do this
02:39
but of course i laughed but the
02:42
principal didn’t think that was very
02:43
funny
02:45
and the really ironic thing is i don’t
02:47
remember what punishment i got
02:49
i do remember he called my parents and
02:50
that was probably
02:52
punishment enough but i don’t recall
02:56
what the punishment was relative to the
02:58
class
02:59
and that was really the last i
03:03
remembered of the class
03:04
those two highlights and then i went on
03:07
to high school
03:08
and became an even worse person
03:13
but then my biggest crime there was i
03:15
just skipped school a lot
03:17
and finally i got expelled or i was
03:20
about to be expelled
03:21
and instead of kicking me out i tried
03:23
the project for alternative learning
03:26
which changed my life it really
03:29
turned me around in the following way
03:32
the first day i went into this
03:33
project for alternative learning it was
03:35
on the may at the may butler
03:36
center on rodney street i sit in the
03:40
principal’s office there
03:41
and he says well what do you want to
03:43
what do you want to learn
03:45
and because i was kind of a smart ass i
03:48
said philosophy
03:50
and he said well we we don’t teach that
03:52
here but let me enroll you down at
03:54
carroll college
03:56
and he got on the phone and literally 10
03:58
minutes later i was signed up for
04:00
classes at carroll college
04:03
the the most important one and the one i
04:06
really remember was
04:09
i think it was an ethics class or survey
04:11
of philosophy with dr barry first
04:14
and i loved it he he was a great teacher
04:17
and apparently i was a great student you
04:20
know 16 years old in a juvenile
04:22
delinquent at helen high but
04:24
put me in the right atmosphere and
04:26
suddenly i turned around and
04:28
i remember he invited me to his house
04:31
for dinner
04:33
you know i’m 16 or 17 years old and just
04:36
was amazed that you know somebody was
04:39
taking me this seriously
04:41
so my girlfriend and i go to
04:44
to his house and knock on the door
04:49
and the woman that answers the door is
04:51
my eighth grade teacher
04:58
but she was very gracious and invited us
05:00
in and we had a great dinner
05:02
great conversation and at the end of the
05:05
night i think i fumbled some
05:08
some muttered apology for what i’ve done
05:10
in eighth grade
05:12
and to her credit she just said oh
05:15
i don’t think it’s as bad as you
05:17
remember and you seem pretty bored back
05:20
then i’m glad to see that you’ve
05:21
turned it around and found something
05:24
that interests you
05:26
and i guess this story is really about
05:29
forgiveness but also the power of a good
05:31
teacher
05:34
elizabeth rivard grew up in a very large
05:37
family in buffalo new york
05:40
she fell in love with stories at the
05:42
family dining room table
05:44
where they were a regular occurrence
05:48
being one of the youngest siblings she
05:50
was mostly a listener
05:52
her family still shares stories when
05:54
they get together
05:56
it’s one of their favorite things to do
05:58
they’ve got some doozies
06:02
elizabeth has changed the names of some
06:04
of the characters in her story
06:06
a quick warning for some of our
06:08
sensitive listeners
06:10
victoria’s story addresses sexual abuse
06:13
with frank language please welcome
06:16
elizabeth rivard
06:17
oh sorry welcome elizabeth
06:22
as mark told you i’m from a large family
06:25
it’s a large catholic family you know
06:28
usually it’s catholic or mormon
06:30
so um
06:34
i was born in 1962 and i have
06:38
three older brothers six older sisters
06:42
and a little brother who’s five years
06:44
younger than me
06:46
so when i was growing up it was the 60s
06:50
early 70s for this
06:53
story and um
06:56
my older siblings were teenagers
07:00
and my brothers were eligible for the
07:03
draft
07:04
but luckily they had high draft numbers
07:08
um and they were all good liberals
07:12
and out protesting the vietnam war
07:16
occasionally getting arrested and
07:19
on friday nights my parents like to go
07:22
out they played bridge and belonged to a
07:24
bridge club so they would go out on
07:26
friday nights
07:28
and my siblings would put the colored
07:30
light bulbs in
07:32
and have parties at our house
07:35
with music and dancing and drinking and
07:38
getting stoned and
07:39
occasionally tripping and while they
07:42
were babysitting
07:43
me and my little brother and a few of
07:45
the other siblings and whatnot
07:47
so this is this is the environment that
07:49
i grew up in
07:52
it was a great family loving family but
07:55
there was a lot
07:56
going on and not only that but my
08:01
grandmother lived with us so that
08:02
at for a period of years there there
08:05
were 14 people living in our house with
08:07
one and a half bathrooms
08:10
and i was the lucky one that got to
08:12
share a bedroom
08:13
with my grandmother and she was
08:17
going blind from glaucoma and
08:21
senile and not only that
08:25
she suffered from depression um
08:29
after her husband had died a number of
08:31
years before
08:34
and twice she had attempted suicide
08:37
while we
08:37
shared a room together one time
08:41
she slit her wrist and another time she
08:43
overdosed on sleeping pills
08:46
and i do have some vague memories of
08:49
that
08:52
so it was frightening for me
08:56
um so
08:59
fast forward to when i’m about 11 years
09:01
old
09:03
and there was a neighbor an older
09:06
gentleman
09:06
who was a gentleman i used that word
09:08
loosely but
09:10
he was a world war ii veteran and
09:13
he used to sit out on his porch and
09:16
sometimes myself or two of my
09:18
girlfriends
09:20
sharon and julie for this story uh
09:25
we would go on the porch and talk to him
09:27
and
09:28
he would ask us to go and get the
09:30
newspaper for him or a
09:32
quart of milk or something we would go
09:34
to the store for him and he’d give us a
09:37
a quarter or whatever and we would buy
09:39
candy and in those days you could
09:41
get a decent amount of candy for a
09:43
quarter
09:45
and then we started going in his house
09:49
and cleaning for him sometimes
09:52
the house was
09:56
pretty dank the shades were always drawn
09:59
so it was kind of dark in there
10:02
and i remember the furniture being kind
10:04
of sparse
10:05
and there were no pictures i can
10:08
remember
10:09
on the walls but he was kind of fun
10:13
because he would let us smoke his
10:16
cigarettes
10:18
um he had penthouse forum
10:22
magazines there which i don’t know if
10:24
it’s even still made but
10:26
it’s about the size of a reader’s digest
10:30
and i don’t recall there being pictures
10:33
in it but
10:34
um there were dirty stories
10:37
and so we would read the dirty stories
10:40
and some of them were just ridiculous i
10:42
i do remember one specifically i think
10:45
it was one a reader submitted
10:49
and the reader had an ant farm and
10:52
he was sleeping and he woke up and
10:54
having the wet dream of his life and the
10:56
ants had all gotten out and were
10:58
crawling
11:03
so i think even at the time i thought
11:07
that was ridiculous
11:10
but anyway you know things kind of
11:14
progressed
11:15
and um
11:18
at some point he started touching us
11:22
and exposing himself to us
11:25
and we were not always all there at the
11:27
same time you know there could be
11:29
different configurations of the three of
11:31
us there
11:34
um and this went on for about a year or
11:37
a year and a half
11:38
and um you know got a little more
11:43
intense as things progressed and
11:47
um i was going to catholic school at the
11:49
time like i said i was about 11 and so i
11:52
was in about sixth grade
11:54
um so
11:57
[Music]
11:58
i knew that this was wrong and i
12:01
shouldn’t be doing it
12:02
but you know i was a kid and i think i
12:05
had curiosity
12:07
i um maybe some of it felt good
12:10
i was getting some attention which i
12:12
wasn’t really getting at home
12:14
so much because there was so much going
12:16
on with the older kids
12:20
but at a point i just i couldn’t do it
12:22
anymore because i was just
12:24
so anxious and i ended up
12:28
growing up to be an anxious young adult
12:31
i had some anxiety and depression i
12:33
think i you know i functioned quite
12:36
normally i went to school i had friends
12:38
i went out but on the
12:39
inside i i really struggled
12:42
a lot i had a lot of shame and guilt
12:47
and i felt like i had a big secret
12:50
that i just could never tell anyone i
12:53
didn’t tell anyone in my family i was so
12:56
ashamed and i just thought god nobody’s
12:59
nobody would understand nobody’s been
13:01
through this this is just really bad
13:03
what you know and he was eating me up
13:07
inside
13:09
to be quite honest and um
13:14
i even thought about suicide a couple
13:17
you know when i was really feeling down
13:20
that
13:20
i mean luckily i never attempted it or
13:23
anything but that’s
13:24
just the angst that it caused me it was
13:27
like all my emotions were
13:29
tied up in a big ball and i couldn’t
13:33
understand
13:35
them it was only until many years later
13:39
that i
13:39
started to work out the knots of that
13:43
ball
13:43
and and you know
13:47
separate out my emotions and and learn
13:50
to deal with them
13:51
but um
13:54
i was about 21 when i
13:57
one morning i i had an apartment with
14:00
some other friends
14:01
and i woke up one morning
14:05
and while i was in that in between state
14:08
of sleep and wakefulness
14:10
i had this like a voice
14:13
and it was like in my right ear
14:17
and it said all the beauty of the world
14:19
can be found in the human heart
14:23
and it was absolutely a profound
14:26
experience for me i mean it
14:30
came with a flood of feeling and it
14:33
at the time it felt like jesus was
14:35
whispering that in my ear
14:39
and it just totally warmed me and
14:43
because i was i was able to see beauty
14:45
around me in the world you know i would
14:48
ride my bike over the peace bridge to
14:51
canada to the beaches up there by myself
14:53
or
14:54
ride down to the waterfront downtown or
14:58
appreciate the flowers and people’s
15:01
yards and
15:02
whatever but i couldn’t see any beauty
15:04
in myself
15:05
i was just so knotted up with shame and
15:10
guilt
15:12
so it was a bomb for my soul
15:16
you know all the beauty of the world can
15:18
be found in the human heart it was just
15:20
profound like wow
15:21
that’s that’s in me and that’s in
15:24
in everyone and that was the beginning
15:29
of my healing journey
15:32
so thank you for listening
15:35
chelsea rice moved to montana in 2011 to
15:39
join her partner
15:40
and within a year was diagnosed with a
15:42
rare and aggressive bladder cancer
15:45
it was then that she this is
15:48
not what i’m supposed to be reading i’m
15:51
giving away the story
15:53
oh no that’s not true this is what she
15:54
gave me
15:59
she’s an advocate for cancer patients
16:01
teens and misfits is a lover of arts and
16:03
literature
16:04
and writes nonfiction she believes in
16:06
resilience is a survivor and is also a
16:09
crazy bird lady
16:10
please welcome chelsea rice in 2012
16:16
as mark said i was diagnosed with a rare
16:19
and aggressive bladder cancer
16:22
it was october and in the weeks before
16:26
my partner and i had been sitting in the
16:28
capital rotunda
16:30
watching a buddhist monk tap out
16:33
a mandala made of sand and we were there
16:37
for
16:37
multiple days in a row watching this
16:39
beautiful process
16:40
unfold and i’m sure that i don’t
16:45
i’m sure that there was a intention that
16:48
was set for that particular mandala
16:50
perhaps it was compassion but for me i
16:53
just kept thinking
16:55
about impermanence over and over and
16:58
over again
17:01
one of those days we were up there was
17:02
october 5th
17:05
and we were just about a 15th
17:09
dates are really hard to remember when
17:10
you’re about to learn you have cancer
17:14
and we went to go see a urologist over
17:18
at st
17:19
peter’s um
17:23
that day it was a friday at about 4 30
17:27
p.m right before my 35th birthday
17:31
about two weeks before and when a doctor
17:34
tells you to come in on a friday at 4 30
17:36
p.m
17:38
beware
17:42
so from what i remember there was
17:46
my partner and i sitting and waiting and
17:48
i already knew that this was going to be
17:49
a cancer diagnosis but
17:51
when she pulled up the pilogram which is
17:54
basically a
17:54
black and white x-ray that just pulls
17:57
out
17:58
one system of the body and this was my
18:01
kidneys
18:02
my ureters and my bladder and she pulls
18:05
it up on her computer
18:07
and my partner charlie who i’ve been
18:10
with at that time for about
18:12
a decade is sitting next to me
18:16
and before she can even start talking
18:18
about the system as a whole
18:20
i already can see the lump
18:23
the tumor on the side of my bladder and
18:25
everything just
18:26
goes dead silent kind of like charlie
18:29
brown’s teacher
18:29
just but i can
18:33
feel the only thing i can feel is my
18:35
partner’s hand holding my thigh
18:37
just kind of lightly tapping keeping me
18:39
present for
18:41
at least a little bit
18:44
i remember sitting in the parking lot
18:47
after that diagnosis
18:49
thinking how do i go home
18:52
and call my parents how do i
18:55
how do we and i think i even said to my
18:57
partner charlie how does somebody get
18:59
this
19:00
diagnosis and then get in a car and
19:02
drive home
19:04
like how do you do that so i did
19:07
sit on the back porch that day and i
19:09
called my parents and told them
19:10
and delivered this terrible news i think
19:13
what was even more terrible is that the
19:15
bladder cancer
19:16
was a rare cancer that only two percent
19:20
of the diagnoses
19:21
in the united states are the other
19:24
98 are commonly related to
19:29
lifestyle drinking smoking
19:33
working in chemical factories mine was
19:35
due to environmental toxins
19:38
arsenic in groundwater
19:41
that’s a different story though so in
19:44
order to determine a treatment
19:46
for my bladder cancer nobody here has
19:49
the skill really and there are no
19:52
studies to determine how you would treat
19:55
squamous cell carcinoma of the bladder
20:00
so we had to go to a tertiary
20:02
institution
20:04
and what we decided that fall was
20:07
to go over to the mayo clinic what eva
20:10
enzler calls
20:11
cancer town it’s okay you can laugh
20:15
cancer is kind of funny
20:21
we at the time i was teaching part-time
20:23
as an adjunct professor between helena
20:25
college and carroll college
20:26
my partner is a high school teacher so
20:29
we were
20:30
totally making lots of money
20:36
and i was fresh out of graduate school
20:38
so i did not have insurance
20:40
and this is 2012. so
20:44
we didn’t have a whole lot of money so
20:46
we drove on a month after the diagnosis
20:49
we drove up to haver on a frosty
20:52
november day
20:53
to catch the train to rochester
20:57
however have you all been to the haver
21:00
train station it’s
21:03
one room i don’t think this really
21:06
exists but i think that there’s like a
21:08
dilapidated um phone booth on the
21:11
outside maybe by the turning tracks
21:13
yeah and it’s like a clapboard
21:16
exciting that’s all weathered there’s
21:19
like one person who shows up for 30
21:20
minutes and then leaves
21:22
when the train comes in when you depart
21:25
so my partner and i get on the train
21:27
and um you know it boards about midday
21:31
so you drive through
21:32
you go through the night on the train
21:33
and i don’t know if any of you have
21:35
ridden a train lately
21:37
it’s just barely a step above riding a
21:39
greyhound
21:41
just barely it’s cold
21:44
it’s really cold when you if you have a
21:47
seat near the window and you lean up
21:48
against it you can feel the winter
21:50
coming through the vents and against
21:52
your face and
21:54
lots of families in bulk ride with lots
21:56
of kids
21:57
and so it often looks like there’s the
21:59
kids have been like
22:00
licking the glass and then like rubbing
22:04
their snot on it
22:06
it’s pretty spectacular for a sick
22:09
person
22:10
so when we got on i um happened to see
22:13
where the conductors would sit we were
22:14
in the very back train car
22:16
and i noticed that they had lysol wipes
22:18
so i kind of stole a couple
22:20
and like took them to my chair and wiped
22:22
things down i was terrified when your
22:24
immune system is compromised everything
22:26
is scary
22:27
um you know we drove through the night
22:30
and
22:32
it was a solemn ride
22:35
those seats are really uncomfortable
22:37
they don’t go back all the way
22:38
you kind of sit you know scrunched up
22:42
there’s people like yelling there’s
22:44
people getting drunk it’s very noisy
22:46
lots of clamor
22:47
and all i can remember passing through
22:49
the night was going through williston
22:51
and north dakota and seeing the oil
22:54
fields on the horizon
22:56
and they’re really beautiful
22:59
it’s hard to say that but they’re like
23:02
little
23:02
candle wicks like staggered at different
23:05
levels along the horizon they’re
23:06
beautiful
23:08
and the workers from williston were on
23:10
the train with us and i mean
23:11
i’m a liberal i’m crazy liberal of
23:14
course i have a
23:15
same-sex partner um
23:18
and you know i’m pretty just i’m pretty
23:20
concerned about uh
23:22
fracking and oil fields and the workers
23:25
were so pleasant and they were so kind
23:28
and they had these
23:28
really even-keeled conversations with us
23:31
and
23:31
they were just riding the train back to
23:33
their cities
23:35
just trying to feed their families and
23:36
it was really a profound moment talking
23:39
to them
23:40
that night my partner and i had to
23:44
wanted to eat dinner in the dining car
23:45
and if you’ve ever ridden an amtrak
23:47
train
23:48
you don’t get to just sit with you and
23:50
your person they fill the seats up
23:53
and so we sat on one side in the dining
23:56
car
23:57
and amtrak food is very cliche it was
23:59
like pieces
24:01
farmed salmon with like a stick of
24:03
poorly steamed broccoli over it
24:05
you know it was very bland food it
24:08
looked good but it was pretty bland
24:10
but before we started to eat these two
24:12
people they were bringing these two
24:14
people to us
24:15
and i’m not gonna lie again with a
24:18
little bit of judginess
24:19
um there was a tall disheveled looking
24:22
man wearing like
24:24
outdoor gear and a smaller
24:27
woman of some asian
24:30
descent with a gold cross around her
24:34
neck
24:35
and i was like oh man i might have even
24:38
leaned into my partner and said boy
24:40
this is going to be an interesting
24:42
dinner
24:44
and they came and they sat down and
24:46
quite honestly again i don’t
24:48
remember what we talked about it was all
24:49
very superficial
24:51
um but i do remember that
24:54
she had on this really bright floral
24:57
print with like a cardigan and he had on
24:59
a blue columbia coat
25:02
and um it was pleasant we had a great
25:05
meal
25:06
and right at the end he said
25:09
you know what what are you guys doing
25:11
why are you going to minnesota
25:14
i said oh you know i have cancer we’re
25:17
going over there to get another opinion
25:18
and find out what the treatment is
25:20
and she was just immediately like
25:22
empathetic
25:23
and softened oh my god we went
25:26
we went through something similar he you
25:28
know he had prostate cancer
25:30
and you know it was so hard and we just
25:33
will be praying about you we’ll be
25:34
thinking about you and
25:36
you know we’ll our hearts are with you
25:39
and we kind of just tided up dinner and
25:42
said thank you
25:43
and went our separate ways and charlie
25:46
and i we went to the back of the train
25:48
and
25:49
sat down and kind of tried to cozy up
25:51
with those flimsy little amtrak blankets
25:53
and
25:53
get cozy and about an hour passed and
25:57
then we see the two of these people
26:00
walking towards us
26:02
they’re like oh my god we’ve been all
26:04
over this train looking for you
26:06
and trains you know amtrak trains are
26:08
too level
26:09
right you have like upstairs and
26:10
downstairs so these people
26:13
they’re you know they’re up and down
26:15
they’re looking all over for us they
26:16
have their own room
26:18
lucky them you can get a room on an
26:21
amtrak train get one
26:23
but they walk up and say
26:26
you know we just wanted to come see you
26:28
and give you a hug and wish you well
26:29
again and
26:30
we’re like oh thank you you know we got
26:32
up and we gave him big hugs
26:34
and while we were in full embrace both
26:36
of us
26:38
one of the the man shoved something into
26:41
my partner’s
26:42
pocket and the woman shoved something
26:44
into my hand
26:45
and we both pulled back from the hug and
26:48
we knew they had given us money
26:50
i mean it was very clear that they had
26:52
shoved money into our hands
26:54
and we were like oh gosh no no we don’t
26:57
need this we don’t need this at all
26:58
thank you very much
26:59
you know we tried to turn it down once
27:01
right
27:04
generously just once because we really
27:06
we were in a bad spot
27:08
um but no no no
27:11
please take it they said and so we
27:13
thanked them and said we really
27:14
appreciate it you know this is going to
27:16
be a hard time
27:17
off they went and we sat down and
27:20
looked in our pockets and i had two
27:22
hundred dollars in cash and my partner
27:24
had
27:25
a three hundred dollar check in her
27:26
pocket
27:29
um that was one of my first experiences
27:33
during my cancer journey with strangers
27:35
reaching out to us and giving us way
27:36
more than we even thought
27:38
was possible i later because the address
27:42
was on her
27:43
check wrote her thank you card and sent
27:46
it off to seattle where they lived
27:48
and i don’t remember her name and it
27:50
doesn’t matter
27:52
she sent a note back that basically said
27:55
we are so happy to have been able to
27:57
provide for you and you do not have to
27:59
keep up this relationship because of it
28:02
and we wish you well
28:05
[Applause]
28:07
bob yost’s regular daytime career has
28:10
been working with taxes in indiana
28:13
oregon and montana nighttime gib
28:16
gay gigs were spent playing the drums in
28:20
in bands brand x
28:23
jack daniels sodbusters and the last
28:26
resort
28:27
his greatest joys come from his family
28:29
and raising three kids
28:31
please welcome bob yost
28:37
god i love that woman rebecca
28:41
we have great sex
28:45
we do have bizarre arguments
28:48
but really do have great kids i would
28:51
say they are
28:53
they’re very beautifully unique
28:58
as is their mother rebecca she couldn’t
29:00
be here tonight
29:01
she’s an oregon i’ve been married
29:05
38 years
29:10
pretty amazing um i first met rebecca
29:13
and i didn’t actually meet her
29:15
we were both state employees
29:18
and i was sitting just on the other side
29:20
of the cubicle from her
29:22
she was on the other side of the wall i
29:24
could hear her talking
29:27
and she was talking about the new guy
29:30
who had just started work me
29:34
and and it was not very flattering
29:37
whatsoever um
29:41
but just hearing that voice i was so
29:43
intrigued
29:45
she had no i mean there was no filter
29:48
whatsoever
29:49
in whatever she said i learned more
29:52
about my co-workers and my boss
29:55
than i ever would of meeting them
30:01
that was a monday
30:05
the saturday before
30:08
susan who worked downstairs in the same
30:11
department
30:13
she had lived with her parents all her
30:16
life
30:17
that saturday morning she moved into my
30:19
tiny
30:20
little duplex apartment
30:24
that saturday afternoon we were married
30:29
by a pentecostal preacher
30:33
and it was also her
30:36
dad um it was surprising her mom dad got
30:40
that wedding together pretty fast
30:41
we were in a big uh big ceremony
30:44
a lot like this beautiful building and
30:47
just to give you an idea about it
30:49
the four groomsmen and myself
30:53
we are dressed and i’m not exaggerating
30:57
shoe to this
31:00
head to toe in matching rittle
31:04
outfits
31:08
and i was drunker than a skunk
31:12
i mean to the wall because i did not
31:15
love her
31:18
that next saturday in my tiny little
31:21
duplex apartment the phone rings
31:24
now this is way back before any kind of
31:27
cell phone
31:28
you know facts all that stuff right i
31:31
didn’t even
31:32
have an answering machine so my one and
31:35
only
31:36
landline which is attached to the
31:38
kitchen wall
31:40
rings i still love it so funny when you
31:44
think of those old phones right
31:46
rotary it had two
31:49
real metal bells in it with a ringer in
31:51
between
31:54
so i pick it up hello is susan there
31:57
it’s a female voice i say no i’m sorry
32:00
she’s not
32:02
oh is this her husband why yes it is
32:06
oh i hear congratulations are in order
32:10
you’re a newlywed i say thank you very
32:14
much
32:15
she says well this is the nurse from dr
32:19
middleton’s office the tests
32:22
are still all negative
32:26
susan is not pregnant
32:30
yeah i’m an idiot i didn’t see that
32:31
coming i married her because she told me
32:33
she was pregnant
32:35
that evening i was to meet her of course
32:37
her parents
32:39
at her house i show up now this is all
32:42
kind of foggy now
32:45
but i do remember going in the kitchen
32:47
and they’re there with susan i take the
32:48
ring off i set it on the kitchen table
32:50
some things were said
32:52
because it’s come to known i guess they
32:54
knew
32:56
but i didn’t as i am leaving
33:01
susan chases me down
33:04
she goes i can’t believe you did that
33:07
you ruined my mom’s dinner
33:15
needless to say that marriage lasted a
33:17
legal
33:18
90 days
33:21
i’m going back to that little duplex
33:23
apartment to pick up my stuff
33:24
and my brother and my dad come with me
33:26
and my brother he pulls it up and he
33:28
goes
33:29
he’s packing a nine millimeter he goes
33:32
you know just in case we have some
33:34
trouble
33:37
okay george we’re not gonna have any
33:39
trouble
33:40
get inside lo behold there are a few
33:42
things missing
33:43
but thank goodness my pride and joys are
33:46
there i had a
33:48
a big old magnavox tv and it was in a
33:51
wood cabinet man
33:53
and my stereo component system oh god i
33:56
love that thing
33:57
and my brother had made a whole wood
33:59
cabinet you know whole
34:01
records components my turntable you know
34:05
big speakers susan
34:08
had taken a can of spray paint and it
34:10
was
34:13
over everything classic i can laugh
34:16
about it now
34:17
um so we got our stuff loaded up
34:20
and my dad turns to me and god bless you
34:23
dad i love you
34:24
you know that um he turns to me now my
34:28
dad
34:29
loves a a good phrase like you know god
34:32
damn it yeah god damn it
34:34
and he’d use the hell word you know but
34:36
he turns to me and he goes
34:39
that’s the most expensive you’ll
34:41
ever have
34:47
now i will tell you
34:51
that is the only time never again ever
34:54
in my 90-year life with my dad that i
34:56
ever heard him use the f
34:57
word no i didn’t see that coming i’ll
35:00
tell you that um
35:03
fast forward susan out of my life
35:06
luckily rebecca we got married outdoors
35:10
underneath the woods it was glorious
35:12
just perfect wonderful
35:16
day and as i tell this story
35:20
i’m very lucky i’ve had the love of some
35:22
really
35:23
great women in my life for sure
35:28
we got to i got in the car one day
35:32
drove 1750 miles
35:35
from east to west right you know where i
35:36
ended up the mitchell building down next
35:39
to the capitol
35:40
because i had a job interview
35:44
took the interview took the written test
35:46
i did not get the job
35:48
okay two weeks later though another job
35:51
opens up in the same area with the same
35:53
supervisor
35:55
so i got to do it by phone and fax got
35:57
the job
35:58
we’re moving to hell in the montana
36:02
it was glorious pack up the uhaul
36:05
get here and we ran it for a while ended
36:08
up buying five acres out on bird’s eye
36:10
right
36:11
loved it little old trailer that first
36:14
winter
36:14
it hit a 40 below i mean it was 40 below
36:17
and i came into town tonight and i saw
36:20
the ak cafe whatever it’s alaskan cafe
36:22
used to be the red roof cafe remember
36:24
that and they used to have fresh eggs i
36:26
know why because when i used to go to
36:27
breakfast there
36:28
they would serve up a platter of the
36:29
biggest greasy fresh eggs because the
36:31
chickens were right outside the window
36:33
in a pen
36:34
and you know if my wife said hey i’m
36:36
going shopping
36:37
back then it was great oh honey were you
36:39
going
36:41
where was it if you’d been around here a
36:42
while it was the mall or kmart that was
36:45
it
36:45
there was nothing else here loved it
36:48
experience in helena
36:49
was actually a joy i’ll have to say are
36:52
there state employees here tonight
36:55
retired cool yeah i mean because i i’m
36:59
actually one of those
37:01
look at that yeah i so both of those
37:03
women
37:04
i met as state employees so i always
37:07
think that’s
37:08
kind of an interesting you know sidebar
37:10
to it
37:11
and i have to admit that first winter we
37:13
were in a little trailer and i was
37:14
feeding that red stove like crazy
37:16
you know keeping the pipes from freezing
37:18
i think that was my first inclination
37:20
that rebecca probably was not going to
37:22
like montana winners
37:25
at that point so anyway i’m going to
37:27
fast forward to like about chapter 99
37:29
out of all this stuff
37:32
great thing is wonderful kids
37:36
raising them all see them go off
37:40
they’ve done really well for themselves
37:43
and it’s been really nice
37:47
my wife goes you know what we love that
37:49
oregon coast don’t we and i go yeah it’s
37:51
really nice because we go out there to
37:52
visit
37:52
i want to retire there i go that’s cool
37:54
you know i do you know i got
37:56
i gotta wait till retirement health
37:58
insurance oh my god i gotta keep working
38:00
she goes i don’t care i go okay it’s one
38:03
of those yes dear
38:04
um so i go yep we find a little place
38:07
over there she loves it
38:09
and i mean blood sweat and tears we’re
38:10
tearing up stuff out the thing tore off
38:12
walls took out cabinets
38:15
remodeled a bunch of it i mean
38:18
oh gosh all new windows all new
38:20
appliances
38:22
got back had taken the lap what i hope
38:24
was the last 20-foot u-haul
38:27
back from there right because now i live
38:29
in missoula checking the u-haul in
38:32
sunday evening i get a text from her
38:36
i figures for sure it’s going to say oh
38:39
are you out shoveling snow
38:41
because i’m walking on the beach
38:44
she said i’ve been thinking about this a
38:46
while
38:48
okay she’d been to a lawyer’s office
38:52
she told me what the major settlements
38:55
would be
38:56
that i’d be served divorce papers i was
38:59
served divorce papers
39:00
that week at work up front
39:04
but don’t feel sorry for me i’ve been
39:06
very blessed
39:08
you know i didn’t see that coming but
39:10
there’s always two sides to every story
39:12
too
39:14
but thank you
39:30
[Music]
39:40
do
39:42
[Music]
39:53
you